Risks Treating Prostate Cancer

A family member, "Ben," visited as part of the holiday weekend. His visit gave me a chance to learn how he's been doing recently since his own prostate biopsy and surgery for cancer 3 years ago. This guy is a fit dude, retired from a law enforcement career, sporting a flat belly and looking like he might be wearing 30 inch waist jeans. He doesn't do anythng half way and is pretty straightforward about stuff, even personal stuff. When we had a little time alone together he was willing to talk a bit about his experience with prostate cancer. As usual Ben was straightforward and not remotely self pitying. The guy is a realist.

Three years back, Ben had an elevated PSA, and his urologist recommended a prostate biopsy. His recollection of the procedure: "Unpleasant. Not something you can't deal with, but not something you want to do more than once." The biopsy results came back normal -- no cancer found. But the urologist was not convinced he'd sampled in enough places to be sure there was no cancer. So he recommended, and Ben agreed to a second biopsy session. Again, not a pleasant experience. But this time a diagnosis of early prostate cancer. So early and small, in fact, that the first biopsy had missed it altogether. The recommendations the urologist offered ranged from "wait and watch" to having the gland removed now. A few of Ben's relatives have died of cancer. He has a signficant concern that he could easily become yet another cancer death himself. The wait and watch thing only suggested to him a delay of an inevitable need to remove the gland -- and he wanted to get it taken care of now.

At the time, Ben lived in an area where good medical care was available, but even better care was available a few hours drive away. His urologist suggested he obtain a second opinion to think all this through. One particular option the urologist mentioned was robotic surgery, something available in other medical centers, but not something this urologist, himself, could offer. Ben felt comfortable with his urologist, did not seek a second opinion, and decided to have his urologist go ahead with a standard, open surgery, prostate removal.

The surgery went well, no particular difficulties. Then the healing. Again, no special problem. Recovery was not immediate, however. Ben still faced the two serious complications of total prostate removal, or "radical" prostatectomy, as the kind of surgey you do for prostate cancer is called.

The first major problem is incontinence. The problem here is that the sphinctre that holds urine in the bladder is cut open during the surgery and then reconstructed at the end. Even the best surgeon is not as good as the original architect, so some incontinence during healing is to be expected. Most patients are said to recover normal bladder function in a year. Some sooner. Ben was wearing pads to catch leaks for a year. Now, at three years after surgery, he has only occasional leak events, particularly when working out at the gym. He no longer uses the pads. He did use the bathroom at my place twice in the space of an hour. I suspect he does not allow himself to store up much volume in his bladder so that there is not much pressure trying to get out. He says he still has small leaks when he coughs or strains (like lifing stuff, at home or at the gym). It's not a problem for him. Or not a major problem.

The second major complication of this sort of surgery has to do with natural erections. Or the loss of them. There is a pair of blood vessle and nerve bundles that run along each side the urethra, the tube leading urine out of the bladder and through the penis. These nerves are important for sensation in the penis, and for opening the blood vessles in the penis so that it becomes erect. Losing one of the bundles does not make typical erections impossible. Losing both pretty much does. As others have noted in comments on this blog, there are "nerve sparing" surgical approaches that are supposed to decrease the likelihood of damage to these important structures. Even these procedures, however, will not save the nerves if the cancer has invaded near the area where the nerves pass. It is typical that the trauma of surgery itself will shut these nerves down for weeks to months as the area recovers. Recovery of erectile function in a year is a hoped for goal. There is always a chance that the nerve function will never return.

Ben, along with becoming incontinent, also became impotent. And there's been no improvement in that regard for the past three years. "It is what it is," he says with a wry grin. "You don't want to have that stuff growing inside you, so you have to deal with what you get."

Ben seems to be dealing well. He's enjoying doing the things he does -- recently visiting family (kids and grandkids) several states from his new home, and stopping by to see us as part of the trip. He wouldn't be doing any of that if he had succumbed to cancer.

Inevitably, of course, Ben has a friend who lives near his new home, some distance from where Ben had his surgery. The friend had his prostate removed for cancer a year ago. This person was operated on at a large center where a urologist skilled in robotic surgery was available. Robotic surgery involves using a robot with "hands" capable of very precise movements and a video camera to see with when doing the surgery. The surgeon sits at a complicated console where he picks up and moves instruments, but he views the instruments that the robot "hands" are holding and sees what is going on inside the patient with the video camera. The robot is able to smooth out the actual had motions of the surgeon. The view through the video camera is magnified which helps for dealing with small structures. During the surgery the patient is attended by human assistants as well as the robot. The robot can do nothing on its own. Every motion it makes mimics the motions made by the specially trained surgeon using the device. The surgeon operating the robot may be in the same room as the patient, but may actually be in another room. There are said to be several advantages to this kind of surgery. One is to be able to do very small, delicate things better. Another is to allow this particular procedure to be done through a group of small incisions in the belly wall instead of one, larger one. The surgeon is said to be able to see better than in using a traditional surgical opening and reaching in with his own hands. Recovery time is supposed to be shorter. Finally, using the robots allows the skilled surgeon who manipulates the robots to do more such cases a day, which improves the hospitals revenue and partially supports the cost of the robots themselves.

Ben reports that his friend was back to fully normal function 6 weeks after surgery. Fully normal. So, Ben adds, "If I were to do this again, I'd make sure the surgery was done at a place that offered this robotic option."

One can never tell, of course, how different the surgical situations were. Maybe Ben's cancer was sitting right on top of those nerve bundles and saving them was not an option. Maybe the other guy's tumor was far off and sparing the nerves was easy. Who knows? Ben does not know.

For now I don't know what recommendations my own urologist is going to be making after the biopsy results come back. While I'm waiting, however, I would value hearing of others' experience.

Comments

What about the seed plantation procedure? Have you heard of that. Not sure fwhat it is. Maybe someone else fill us in.
 
First off, again I admire you for dealing with this in such a frank and direct way -- you are also a realist. Good on you!

As to 990man's suggestion, I know a guy who had the seed implantation procedure, and he seemed to do ok. As far as I know he is healthy now (he retired just about the time of the procedure, and moved to another state).

He did not say much about the ordeal other than to say that it was a humiliating process, and I presume because of it he did not endure the incontinence and impotence. He is alive and that's what matters, to him and to me.

Might be another option, but I'm sure it all depends on the type, location, and circumstances and for every man that would be different.
 
Hi, I was just reading your post and I have to say you are very well informed.

You have pretty much answered your own question-It pretty much depends on the stage and extent of the disease.
While erectile dysfunction is a very real risk, it is pretty much a case of weighing up the risks and benefits as your friend has.
It may not sound great-but as someone who sees men with prostate cancer on a daily basis there is a lot of support and treatments out there to help you.

Depending on your urologist-watching and waiting is a very safe and practical response, alternatively they may suggest hormone (androgen) treatment, surgery, radiotherapy. Basically it very much depends on staging, histology and extent of your treatment.

in response to 990man the seed inplants are what is either brachytherapy- (A very localised form of internal radiation) or clips that are put in during surgery to help localise the prostate during radiotherapy.

Anyway, I hope that this helps
 
Bud....first of all....PLEASE...do not panic...i have been exactly where you are now....i suspect your chronic Prostitus is the issue...try different meds...and Yes..have the biopsy...i had mine about yr ago...no C at this time...but numbers are higher than the NORM...watch/wait..Your friend maybe could not...hindsight now is his life...more treatment is coming...the BRAC is very popular, seed planting, at your age a radical is def not wanted or necessary...yes the biopsy is rough..the first climax after the prodedure was a bloody mess that hurt like never...but after a month all back to normal...myself still a numbers and waiting game....information is power..if u must have any surgury pls go to a center of excellance....but that is far away in time yet...the biopsy will show a GLEASON score and your urologist will discusss statistics...go slow here...very slow..pls PM ME .....if u wish....this is not a death sentence......nor a permanant loss of sexual drive and enjoyment...J
 
as calambo says, don't panic. But do go see the best urologists, oncologists (if it comes to that) and surgeons (if it comes to that) you can get. Also, again if it comes to this, there are new treatments all the time-- someone close to me is waiting for a couple of new meds that should hit the market before the end of the month, for example (he's mostly out of other treatment options). If he didn't have the doctors he has, he might not even know about that. So it really helps to work with excellent doctors.
 
A few years ago here one of the hospitals invested in a robot, huge cries came out in the press about wasted money. About one year ago the same paper did a one page article on how wrong they were and how many people were saved due to this surgical robot in such a short span of time. Prostate cancer patients from three states and Canada agreed to be interviewed and said without that robot they would of had similar results like you friend Ben. But most because of the robot they were healed and had complete normal function in 6-8 weeks.

It really does pay to see as many people as you can even if you have to drive to get care somewhere else. I know our hospital takes care of booking hotels and aftercare for whole families. I always wonder why people do not get more then one opinion for something this serious?
You are so far ahead of most men in your same position because you are being Pro-Active. Being pro-active saves lives. Keep us updated on your journey it is important to us all.
 
Thank you all for your very helpful and sensitive comments. I feel your concern and I genuinely appreciate you taking time to offer your experience.

Clearly this is going to be an individual journey, but I'm learning here that there are options out there that I'm not aware of, and will want to consider. In any case, it all helps me sleep better.

Thank you! I'll keep you informed, here, how things are going.
 
There are a great number of options used today in the treatment of adenocarcinoma of the prostate. If the cancer is still contained in the prostatic capsule it can also be very successfully treated with what is called "proton beam". There are only (4) of these machines last I knew inside United States Borders. One of these is at Loma Linda University Medical Center in Southern California.

In addition in many cases the erection can be restored by use of intracavernosal injections. It can't fix everybody but it is successful far more than many MD's know. The success depends on the nerve damage as s result of the "clean out" done by the original surgeon.

The other thing to remember is that there are several things that can cause elevated PSA's including prostatitis and under the right circumstances this can also be influenced by a badly neglected bladder infection.

I have known three friends who in their later years posted astronomical PSA's only to find out that their problem was not what was thought after a needle biopsy proved negative.

The method of choice to deal with actual prostate cancer and what is best for the patient varies from patient to patient. Personally I am not a fan of conventional radiotherapy because I have seen a number of "repeat appearances" on this one.

Good Luck and hope that this helps you.
 
Again, good luck my friend. Keep us informed and please remember we're with you every step of the way.
 
I can't add anything from an advice standpoint, other than get more than a couple of opinions. My dad died of prostate cancer and I had a scare a couple of years ago (nothing happened as the symptoms went away and the cause was indeterminable). For my dad, the medical opinions varied quite a lot, which was confusing as hell at the time (7 years ago).

Thank you for sharing with us what you're going through as we might be following behind you.

Best wishes
 
Thank you, my friends. Your comments are both supportive and helpful. I really appreciate it all.

Proton beam therapy is something I'd not heard of. Clearly, if a cancer diagnosis appears, it will be well worth my time to get an exhaustive list of treatment approaches appropriate to my personal condition. And learn about each.

Tomorrow I start the antibiotics my urologist prescribed in preparation for the biopsy scheduled the following day. The antibiotics are to reduce the chance of infection from firing a needle multiple times through the lining of the rectum and into the prostate. What an image. Starting the pills makes me feel one step closer to the event, to learning whatever it is I have to learn. We'll see what happens.
 

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