Oprah’s Thyroid Club

Great! The only thing Oprah and I have incommon is the fact we are both Black women with dodgy acting thyroids. :tongue: I'd much rather share her ability to make good investments.

In 1997 I was diagnosed with Grave's Disease and received radioactive iodine followed by radiation as treatment. I ended up with a radiation burn and chemo-type symptoms (high fever, vomiting, nausea, and my hair fell out in handfuls) as a result of a radiation overdose. Most people with a hyperactive thyroid, especially Grave's Disease lose weight. I gained 30 pounds in 3 months.:mad: I hate being the anomaly.

Though I still go for quarterly blood blood work and take Levoxyl daily, I often need to have my dosage re-adjusted.

Six months after the radiation treatment I was hypothyroid, which I had been warned to expect. By 2002 I had gained quite a bit of weight, had relocated from Massachusett's to New Jersey for love and a new career.

In 2004 I found out that I have Hashimoto's Thyroiditis and it's been an on going battle with endocrinologists ever since to get my thyroid regulated. Doctors tend to look at your T3 & T4 blood work and if it falls within a certain range they deem you okay. They tend not to pay any attention to your actual symptoms. :mad:

Anyone else have a problem with their thyroid?
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New York Times - October 19, 2007, 11:54 am
http://graphics8.nytimes.com/images/2007/10/19/health/People-Winfrey-Letterman_19.jpg
Winfrey’s thyroid threat. (AP Photo/Harpo Productions,George Burns)

For years, a “thyroid” condition was widely viewed as a euphemism for being fat. But now, the ultimate celebrity endorsement from Oprah Winfrey may finally give thyroid problems the respect they deserve.


Earlier this week, Oprah spoke on her talk show about a recent bout with exhaustion and weight gain that was diagnosed as thyroid disease, an issue she also wrote about in her magazine.
My body was turning on me. First hyperthyroidism, which sped up my metabolism and left me unable to sleep for days. (Most people lose weight. I didn’t.) Then hypothyroidism, which slowed down my metabolism and made me want to sleep all the time. (Most people gain weight. I did! Twenty pounds!)
Thyroid disorders, which are far more common in women than men, are said to be among the most undiagnosed and misdiagnosed health problems. Part of the problem is that the symptoms are ambiguous and likely to be written off as stress, menopause or normal aging. The most common thyroid problem is caused by an underactive thyroid (hypothyroidism), and symptoms include weight gain, fatigue, depression, high cholesterol, neck pain, hair loss, low sex drive and worsening menstrual symptoms. An overactive thyroid, or hyperthyroidism, can also cause neck pain, hair loss and menstrual and sex-drive problems, as well as insomnia, unexpected weight loss, chronic diarrhea, anxiety and panic attacks, heart palpitations, high blood pressure and bulging eyes.

The thyroid, a butterfly-shaped gland in the neck, has gotten celebrity attention in the past. Former president George Bush and his wife Barbara both suffered from thyroid problems, as did Olympic track stars Gail Devers and Carl Lewis. But the reality is that nothing compares to Oprah in terms of raising public awareness about anything, whether it’s a favorite book, a politician or a disease.

The downside is that the talk show host has been vague about her diagnosis and treatment and even suggested that her body’s imbalance of thyroid hormones was the result of working too hard and not relaxing enough. Her main “treatment” approach seemed to be quitting work for a month and eating only fresh food at her tropical Hawaiian estate.

“While good nutrition, exercise, and self-care are certainly part of overall good health, they are not likely to cure your thyroid condition,'’ writes Mary Shomon, founder of a well-known thyroid disease Web site and the author of several books on the topic. “It may have worked for Oprah, but …I doubt most of us could ever aspire to such a luxurious recuperation.”
Ms. Winfrey hasn’t detailed her specific diagnosis, but Ms. Shomon says the description sounds like Hashimoto’s thyroiditis, an autoimmune disease that is characterized by the thyroid’s gradual decline into hypothyroidism, interspersed with periods “when the thyroid sputters to life and becomes temporarily overactive.” Avoiding medical treatment is only an option for those with very mild thyroid problems, notes Ms. Shomon, who worries some women may try to self-treat rather than consulting a doctor about their symptoms.

For a recap of Oprah’s talk show about thyroid disease, click here. And for an excellent primer on thyroid problems, I suggest this story from The Times.

Comments

I don't think it's the only thing you have in common with the *other* big O (sorry, had to use that one). You're both generous and compassionate people highly concerned with the issues facing the world.

Still NJ, I think you're about due for some good luck. There are not many people more deserving than you.
 
oh yes, girlfriend. About 2 years after finishing my radiation treatment for ovarian cancer, I, too, was diagnosed with Grave's. Probably caused by the radiation therapy 'overflow', we decided. I drank their radioactive iodine (disappointed my pee didn't glow in the dark!) and have been on levothyroxine ever since, with quarterly blood tests and constant monitoring of my tsh levels.
mine has been less eventful than yours- tho I have suffered a see-saw with weight gains and losses. So many other hormones interact with the thyroid hormones, it doesnt take much I think to throw everything out of whack. I have learned the hard way though, if I don't take my meds- I feel like serious SH*T very quickly, and apparently in time, death can result from not taking the medication.
good luck with yours, sounds like you have a wealth of info already so ya don't need any more of my chatter!!:biggrin1:
 
I developed Hyperthyroid a few years ago, lost about 30 pounds in a couple months, mostly muscle, I still had some fat, was often too weak to get up the stairs. The doctor wanted to do the radioactive iodine treatment, I chose to wait and see what developed. Tapozole was effective, it had to be reduced and then stopped, as I went hypo.
Presently I am in the normal blood test range, am taking no medicine for it, but still have a lot of the symptoms.
 
Yes! My doctor gave my Synthroid a few years ago. She has since said it is cured. WHy do I still have all the symptoms of Hypothyroidism?:mad:
 
I don't think it's the only thing you have in common with the *other* big O (sorry, had to use that one). Do you promise to give me the big "O"? You're both generous and compassionate people highly concerned with the issues facing the world. That's true.:smile:

Still NJ, I think you're about due for some good luck. From your lips to God's ears! There are not many people more deserving than you. I agree!
 
Naughty, do a search on synthroid. I was taken off it cos it was found to give false TSH level results, or at least, inconsistent results.:confused:
 
Well, you are a well informed Georgia Peach. You have a nice body as well. Where to you get all of the information which you share with the members and guests here at lpsg? You are all over the map providing Legal information, Medical infomation, Scientific information as well as practial advise. I am sorry that you left NJ.
 
My wife was recently diagnosed with Hashimoto's Thyroiditis. We are waitint for the med reccomendations now. I think it's great Oprah came out about this because it is way more common than you think.
 
I heard that for individuals struggling with thyroid issues is that doctors tend to view a broad range of thyroid hormone as within "normal" range; in reality, the levels need to be checked and held a lot more level than 0.5-6.0. I read something like 3-3.5 is okay for people who want to control their weight. I hope it all works out for you, though.
 
I have a under active thyroid and was on Levothyroxine for years until my heart started to pound and I felt weak all the time. Now the doc has me on synthroid which has seemed to help. The problem is: what will the side effects of synthroid be ? And no I haven't lost any weight being on synthroid but do feel better.
 
njqt466 - You're taking the generic for Synthroid, which I'm sure you knew already.....
I wanted to mention that a friend of mine, who was seeing an endocrinologist for her thryoid condition (she had to drink the radioactive stuff) told her NOT to take the generic for Synthroid !...and to always take Synthroid.

Her Dr. said the generic is Not metabolized the same as Synthroid, and therefore not as effective.
I have insisted on Synthroid ever since she told me that.
Synthroid's been around for a very long time and is not terribly expensive.

I know other people who have noticed a difference between the generic and brand names of drugs they take regularly.....sometimes the generic is not the way to go.

I don't know if you have insurance that helps with Rx expenses, or not.

My TSH is the part that gets out of line.....I get that tested once a year.
 
Have any of you with underactive thyroids been able to lose weight and keep it off successfully? :confused::redface:

In the past 7 years I have tried the diet/exercise combo, Weight Watchers, Curves, Exercise without dieting and dieting without exercise. NOTHING works! :mad:
 
To answer your question P NOT! My doctor has once again given me Synthroid which I have not taken because the pharmacist says it interacts with other meds that I have to take. SO we shall see. WHen people tell you "its my glands" there may be something to it! LOL! :biggrin1:
 

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